716-835-7161
Primary Services
Disease/Disability Information, Health/Disability Related Support Groups, Personal Health Care Advocate Services
Description
Provides information and education about lupus; new patient orientations; Lupus Education & Advocacy Network (LEAN Forward) meetings; a quarterly newsletter; annual regional symposiums; advocacy; advocacy/meeting facilitator training; research grants; community fundraising events; and patient and family support.
Hours
By appointment only.
Eligibility
Lupus patients, family members or caregivers of individuals with lupus or related autoimmune disease, and those interested in learning more about lupus and advocating for the lupus community.
Service Area: Upstate NY, including WNY.
Service Area: Upstate NY, including WNY.
Intake Process
Contact by email at info@lupusupstateny.org or by phone at 716-835-7161.
Program Fees
There is never a charge for information and support. Single copies of printed information about lupus, as well as new patient orientation and support group meetings, are all free to lupus patients and their families and caregivers.
Languages
English; however, some materials are available in Spanish as per website.
Handicap Accessible?
Yes
Date of Official Change
Nov 17, 2020
Contacts
Judith Burnett Christian (Primary)
President & CEO
info@lupusupstateny.org
716-835-7161