505 8th Avenue
Suite 902 New York, NY 10018
upstateny.hdsa.org/
Helpline
800-345-4372
Nancy Rhodes
212-242-1968
Primary Services
Disease/Disability Information, Health Related Advocacy Groups, Health/Disability Related Support Groups
Description
Provides supportive services to improve the lives of everyone affected by Huntington's Disease, including persons with the disease and their families and/or caregivers. Provides community services, education, advocacy, and support groups, and conducts research through surveys. Also maintains a network of HDSA Centers of Excellence: clinics throughout the United States that share HDSA’s commitment to high-quality, comprehensive care and access to clinical research.
Hours
Monday-Friday, 9am-5pm.
Eligibility
Anyone (individuals, families and physicians) affected by Huntington's Disease and those who are at risk.
Service Area: Upstate NY, including WNY.
Service Area: Upstate NY, including WNY.
Intake Process
Call.
Program Fees
N/A
Date of Official Change
Sep 11, 2019